For COPD, Bronchiectasis Asthma or Respiratory sufferers


February 2017

Pick me ups and lessons learned

It’s been a while since I posted!

And in complete honesty, the last two weeks have been quite tough for me where I’ve been fraught with infection, illness and generally feeling down. I haven’t had the motivation to do much.

But these are the things that make us human as we go through the ebbs and flows of life. It’s what gives me the inspiration to write about these experiences and what we can do about them.

Any other COPD sufferer will know, inside-out, what it’s like when you first get infected and re-infected, whether it’s the common cold or some type of influenza. It’s safe to say, it doesn’t go down like any ‘normal’ healing process. It takes double the time as an ‘average’ person because your immune system is already compromised. And half the time, it’s battling to breath properly, never mind fighting an infection. It really is tough-going.

So what does that feel like?

Continue reading “Pick me ups and lessons learned”

I look fine but…

I’m not. This pertains to the conceptĀ of ‘invisible illnesses’ and the huge discriminatory issues surrounding it. From personal experience, I’ve had many pass off judgement with either snide comments such as ‘can’t you just use inhalers?’ or people making me feel like I committed a crime for parking in a disabled space.

I do my hair and I do my make up every day. Of course I look fine! I have a mask on, but behind that mask, it may take me longer to get ready in the morning because on some days, my breathlessness and wheezing can be out of control. I remember being in London and even when I first moved back home to Aberdeen – the sheer effort it took just to get ready, to shower or to get on the tube to work felt like I was in a marathon with half the lung capacity as ‘normal’ people. Constantly coughing and trying to get oxygen was a task in itself. Walking on lunch breaks with colleagues also felt like a massive effort and I have a distinct memory of returning to work on lunch break and stopping at the bridge because I felt like ran out of oxygen. A kind colleague stayed with me until I could get my breath back from what was already a slow walk. Oh and fainting at work and being wheeled off to the medical room! The struggles are real and no one should be in a position to judge anything.

Continue reading “I look fine but…”

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